Esther, 25, UK, she/her pronouns. Expect various fandoms, but mostly Doctor Who. Also anything else I feel like.
This was meant to be comment on someone else’s post but got so long and tangential that it is now its own post.
I wish Autism $peaks was more like its UK “equivalent” (although they have little in common) The National Autistic Society.
They are on the side of the angels.
The National Autistic Society, although imperfect, is a million times better. It provides genuinely useful services. It acknowledges the existence of autistic adults and campaigns for visibility. It isn’t searching for a “cure” or prevention and acknowledges that many autistic people don’t want a cure. It doesn’t use puzzle piece symbols. It does conduct research, but that research is done more from an “understanding autism” perspective than a “prevention/ cure” perspective.
The services are administered by local branches, so there’s a lot of variability across the country (a friend of a friend gets support from them and says they’re great. Someone I know in a different part of the country has had major problems with them because despite being an autism organisation, they didn’t understand his inability to use a phone.) I’ve no doubt that a few of the local parent-run support groups fall into less serious versions of the “autism every day” self-pity mentality, simply because that’s a thing that happens. But NAS is focussed on helping autistic people have good lives and involves autistic people in the decision making.
They have told the truth about vaccines. Their website gives links to pro-neurodiversity pieces (such as Jim Sinclair’s Don’t Mourn For Us) to parents of newly diagnosed autistic kids.
I am happy to financially support NAS. Not because they never make mistakes, but because they do good and when they do wrong there is a possibility that they will make the effort to correct it because they actually care about autistic and other disabled people.
P.S. if this is relevant I have been d/xed with dyspraxia and ADHD, not autism diagnosis although I was offered an assessment and declined b/c I didn’t believe I was on the spectrum at the time. Now I am not so sure but still won’t seek a diagnosis b/c I don’t think it would help me and the assessment process would be… I don’t want to say triggering because that word is overused, but distressing and bringing back bad memories. Also I live in the UK.